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asleep at mal 9/09
alumiere
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asleep at mal 9/09
i am struggling so hard these days, a ton of the stuff below is very difficult. and social security delays continue to screw me over big-time, so i'm selling off parts of my life history and my soul that i really would prefer not to (along with lots of things i can't or don't wear or use anymore).

i'm currently offering 25% off custom orders for clothes and costumes so check out the rest of the for sale tag http://alumiere.livejournal.com/tag/for%20sale. i've already sold my motorcycle and gear, but there are lots of clothes, corsets, etc for sale. plus my hand forged one of a kind skull pommel katana. eating and staying warm are more important though.

from here on the intro post was originally made in 2010 or so, with occasional updates. feel free to dig into my past posts, ask questions, etc... interaction is good, as long as it's civil; if you're an asshat you will be banned

as to who i am/what i'm interested in:
* i'm an old school punk (for real - born in 1966), now a "dainty punk" living in LA
* i have a bachelors in film/video (after spending three+ years as a chem-e major and realizing i'm good at but don't want to do that stuff) and am all but thesis on a MFA in theatre design (i failed at department politics, and refused to keep paying the department to tell me i was too alternative/confrontational when that was the theatre i love)
* i like cooking, sharing food with friends, clubbing, reading (everything from tolkien to shakespeare, atwood to allende, artaud to gaiman, kiernan, ellis, jemisin, butler, buckell, morrison and
...), theatre, good films, fun movies. but my main passions now are creating stuff - usually custom clothing and costumes for me and others, and getting lost in the music and dancing. dance is the only place i sometimes feel free and centered so i fight for it with all i have
* i'm polyamorous, queer, i fail at fitting into traditional gender or sexual roles, and i sometimes write about that stuff, but it's always flagged for those of you who don't want to read it. as far as pronouns go, i prefer they/them but she/her is acceptable. *labels i claim include genderqueer, lgbtq, hard femme, freak, goth, rivethead, punk, activist, feminist, atheist, disabled
* i'm mixed-race, more feminine than masculine in appearance, pan/bisexual and very anti-racism, anti-patriarchy, anti-homophobic, anti-rape, pro equality and i write about that too
*there a cute, bitey, projectile shedding princess named pris who owns me. she keeps me warm and her purrs are called sleepyons because they often knock me out which is helpful on bad pain days
* i've had arthritis in my right hip since a fracture over 20 years ago, and chronic pain in my shoulders/upper back forever. i have been more recently diagnosed (between 2005 and 2007) with hashimoto's thyroid/auto-immune adrenal deficiency, chronic fatigue syndrome, fibromyalgia and related health fail. i'm still learning how to cope with these conditions as they get worse - although figuring out the right treatment for this many problems is hard
*i have what the neurologist calls transient global amnesia; no known cause for that other than that it started after an extremely bad reaction to lyrica in 2009. it really fucks me up - so when i forget who you are, it's not you; i couldn't pick out my family most of the time. and my love of reading is way hard to indulge now, my cheats for keeping shit straight require cheats, and i may ask you to fill in blanks in my memory if we hang out regularly
*i can't afford some of the suggested treatments and struggle to pay for the absolute must haves; i don't a job, and medi-cal (thanks aca) helps but not enough. i've been fighting to get social security since 2010; they keep dragging their feet on a decision on my appeal from december 2014 (the latest word after my january 2016 er visit is hopefully april or may 2016, but please send them a detailed update and that i "should" be qualified). donations are welcome if you want to help me get through life til then...








note: a donation of $25 or more will get you a custom phone sleeve, glasses sleeve or change purse made of flannel or velvet or jersey remnants (just send me measurements). this is my phone sleeve:


All public posts are open to sharing, quoting, and commenting under a creative commons non-commercial license. Just make sure you link back here.

Creative Commons License
This work by http://alumiere.livejournal.com is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 3.0 Unported License.
8/10/16 0:15 - 44 (45) questions
asleep at mal 9/09
ashbet posted this and it seems like a good way to spend a little time...

1. Do you like blue cheese?
yes. generally i go for soft milder blues when shopping just for myself. but cheese plates for sharing almost always have a few blues

2. Have you ever smoked?
yes. not til 20 something, i quit except for social smoking for 5 years, then went to grad school. stress = i eventually started smoking regulauly again. i've quit multiple times since moving to los angeles before realizing the clove cigarettes keep some of the nastiness of auto-immine disease and brain fail in check

3. Do you own a gun?
my ex-husband and i jointly owned several. he kept them all

4. What is your favorite flavor?
extra salty savory tastes, pretzels with hummus & cheese

5. Do you get nervous before doctor visits?
new doc yes, doc i know/trust not really

6. What do you think of hot dogs?
overall meh, bacon wrapped kosher dogs properly grilled are a rare treat

7. Favourite Christmas movie?
maybe animated grinch

8. What do you prefer to drink in the morning?
water, mexican coke, red chai with honey or orange peach mango juice

9. Do you do push-ups?
nope. even when i was climbing or teaching aerobics my body would not cooperate.

10. What is your favourite piece of jewelry?
all my daily sterling silver? my grandmother's vintage pink gold watch? the jade pendant christopher gave me with the request to never take it off (it's always against my skin although not necessarily around my neck)?

11. What is your favorite hobby?
books

12. Do you have A.D.D.?
not that i'm aware of

13. What is the one thing you hate about yourself?
transient global amnesia. before lyrica fail my tendency to accept blame & apologize for everything (i still do this i think, but i forget so much it's hard to be sure)

14. Middle name?


15. Name three thoughts right now?
my face hurts. my hands/arms are wrecked. this is fun, thank fuck for androids and voice to text.

16. Name 3 drinks you drink regularly.
amaretto di saronna, juice/lemonade, sodas with real sugar

17. Where's the question?


18. Current hate right now?
ssdi/ssi delays

19. Favorite place to be?
the monte cristo with xian spinning

20. How do you ring in the New Year?
helping out at xian's nye ball

21. Where would you like to go?
now? a warm pool with a hot tub next to it.

22. Name three people who will complete this?

23. Do you own slippers?
ultra-suede & memory foam basic black 'mens' slippers

24. What colour shirt are you wearing?
silver & black dress, black gauze hooded coverup

25. Do you like sleeping on satin sheets?
no. no. no. 100% cotton, high thread, freshly washed.

26. Can you whistle?
nope.

27. Favourite colour?
jewel tones (green, blue, red), deep purple, black & white & silver & grey

28. Would you be a pirate?
meh.

29. What songs do you sing in the shower?
synthpop, occasional ebm, portishead

30. Favourite girls name?

31. Favourite boys name?

32. What is in your pocket right now?
burt's bees lip gloss (plum), meds, ginger mints, smokes/lighter, id/$, bus fare

33. Last person that made you laugh?
aj

34. Best toy as a child?
books

35. Worst injury?
as a kid? cross eyed=surgery, broke front teeth off in telephone pole collision on bike, tore open head on side of pool after 1 1/2 flip in. as an adult, fractured hip socket, fibro

36. Where would you love to live?
i'm here already - los angeles is a wonderful fit

37. How many TVs do you have in your house?
zero unless you count computer/phone for streaming stuff

38. Who is your loudest friend?
clothes - bellz, voice - o or b or j

39. How many dogs do you have?
no dogs, 1 cat

40. Does someone trust you?
lots of people. i earn that though

41. What's your favorite movie?
impossible - i was a film major & i'm a cinema nerd. that i worked on, naked & afraid, aids project or the engine films maybe

42. What is your favourite sweet?
amaretto di saronna or really good peaches or nectarines

43. What is your favourite sports team?
us women's soccer?

44. What song do you want played at your funeral?
i plan to host my own wake before i die so i can dance at it. funeral - as long as it's not religious i don't care, maybe black celebration?

(ashbet added)
45. And since that was a morbid note to end on -- what is your favorite thing about *yourself*?
my anger - without it i'd curl up in a ball & stop. it's fuel and usually i can release it if the anger gets too much (hence fighting to keep dancing - my center). controlled rage is what makes me go
asleep at mal 9/09
since today is fibro day, here's the latest on my ongoing lack of cope, how fibromyalgia has impacted me personally, and both the good and bad in my life in spite of this asshole of an illness.

long post is longCollapse )


please, please boost my fundraising - it would be awesome if it went viral. http://alumiere.livejournal.com/452956.html and https://www.youcaring.com/alumiere-pris-540030 anywhere - lj, fb, twitter, ig, wherever you think people might see it who are interested in sewing or swords or might have a few bucks to spare - 600 singles would make a huge difference. and if you've already spent money with me this year, i'm not asking for anything more - you've done your share.
asleep at mal 9/09
custom clothing, kilts, costumes & cosplay - 25% off! (sale extended as i'm still struggling to catch up and have been turned down again for my much needed medication)
http://alumiere.livejournal.com/452233.html

raid my closet part 3: dresses, skirts, pants, tops - lip service, tripp, made by me, etc
http://alumiere.livejournal.com/451757.html

raid my closet part 2: corsets, bustiers and cinchers - brute force leather, house of worship, vollers, tripp nyc, & living dead souls
http://alumiere.livejournal.com/451454.html

custom hand forged skull pommel katana from shark of shark's cove:
http://alumiere.livejournal.com/451271.html

please share me?
asleep at mal 9/09
or, i am not a fucking addict

earlier today, in response to an ongoing conversation about the new cdc guidelines on opiates (see here: https://storify.com/AnaMardoll/chronic-pain-disability-and-opioid-access) i wrote this series of tweets:

dear obama administration/fda/cdc - your new rules on opiates hurt chronic pain patients to the point that many of us will die b/c of it.

it was already ridiculously hard to get the medication that keeps me from spending days on the bathroom floor puking b/c of pain

now, i'm out of [med x], can't get new doctors to fill them, can't afford out of pocket visit to old doctor to fill them, so...

i'm losing 2-3 days a week to pain and vomiting. also dropped too much weight since i can't hold down food. 5'7 and 91lbs

is not okay, even for super thin me. please consider the people who need opiates to live & change your rules before we start dying

and then i read http://theferrett.livejournal.com/2050453.html which got a lot of things right, but also failed for me by calling a chronic pain patient who needed opiates an addict. this was my response:

"not bad overall. but... i don't think your uncle was an addict. if he needed the meds to function, if he wasn't getting high but getting relief then he's not an addict.

this may sound harsh, but are you an addict because you need your meds? what about the diabetic on insulin? so from my pov, calling tommy an addict is calling me and every other person with an incurable pain condition an addict. it is wrong, and part of why these bullshit guidelines are now in place - because we're seen as not fully human due to our conditions.

i wrote about how hard it is before these new guidelines earlier today here. https://storify.com/alumiere/the-policy-on-opiates-in-the-usa-is-hurting-people

people are going to be harmed and die because rather than prevention & treatment we prohibit and shame. and if something doesn't change for me soon, i'm likely to be among them. because without opiates i can't hold onto enough food and it's terrifying to watch your body waste away because the cdc thinks chronic pain patients don't deserve treatments that work."

p.s. if you're able to help/share i'd appreciate it; a fundraiser to help pay for my medication and get me through some tough times (i'm offering perks too) https://www.youcaring.com/alumiereandpris
3/4/16 14:53 - survivors...
asleep at mal 9/09
making the twitter thread a single post here:

this piece gutted me. http://projects.sfchronicle.com/2016/living-with-aids/story … talking with survivors of ‪#‎aids‬ early days in SF, and where they are now.

as someone who outlived her entire community in nyc due to luck of not getting hiv, i am thankful for my life as fubar as it is....

...& every day i struggle i remind myself that the best thing i can do in memory is fight, be angry. also to live, love, find a bit of joy.

i wish lyrica fail hadn't broken my memory; names, faces, loves, hopes & dreams of those i lost are gone forever. just traces & feelings now

but i'm still here, and i carry them in my heart even if i can't remember them properly anymore.
asleep at mal 9/09
get something new for the labyrinth of jareth, renfaire, or start early on your halloween costume. kilts, dresses, skirts, pants, coats and other custom creations including ren/medieval styles are all sale too. i'm offering my sewing skills at a huge discount right now...

while i'm searching for a roommate i'm having to pay the rent on my whole apartment, which is way out of my budget. so i'm offering a special deal right now but you'll need to pay in full by may 30th in order to get these prices. turn-around time will depend on how many orders i get and what you want, but kilts, skirts, pants and dresses i've made before usually take two weeks from start to shipping.

custom kilts and cargo skirts, 'rivet swing' pants, 'princess' dresses or any $200 of sewing for $150 + shipping. if you pick a fabric i have in my stash, that's included; if not, send me your measurements and talk to me about what you want - i'll tell you how many yards you'll need and make fabric recommendations. please note: i do make kilts for people with curves, unlike utilikilts etc.

any $300 of work for $225 (an unlined coat/cassock direct from the pattern for example), any $400 for $300 (a fully lined and custom tailored coat/cassock) and so-on. if i have to ship it to you i'll charge you for shipping when it's ready to send. fabric is the same as above - if it's something i have in my fabic collection materials are included; if not let's talk.

vests; swing influenced dresses; circle skirts; two a-line or straight skirts; two pairs of pirate/ren pants or two t-tunics are now $75 each (or any $100 worth of work).

i can make pretty much anything you can dream up with the exception of corsets (i wear loads of them, but have yet to make one myself). that said i'll be honest if there's something you want i don't think is in my skill set or you'd get a better deal elsewhere. you can comment here, or on the savage gods facebook page or email me (this username at aol)

here's some of what's in my fabric stash...
black & grey plaid, purple canvas with black floral pattern (reversible to plain purple), green, black & white plaid, candy apple red vinyl

white vinyl, black & white stripped canvas

there are lots more plaids, silver/grey crushed velvet, white canvas, black denim, various fishnets, purple sheer with spider web pattern, lightweight cotton jersey/t-shirt material, etc...

some examples of my sewing are below - picture heavyCollapse )
there are more images of my work here: https://www.facebook.com/SavageGods/photos_stream (sorry about some of the image quality - the fashion show and club pictures were taken in low light)

p.s. i also have a lot of clothes and things for sale - everything must go so make me an offer
dresses, tops, pants & skirts: http://alumiere.livejournal.com/451757.html
corsets, bustiers & cinchers: http://alumiere.livejournal.com/451454.html
london underground 9 buckle boots: http://alumiere.livejournal.com/451023.html
shark hand-forged sword pommel katana: http://alumiere.livejournal.com/451271.html

lastly, if you'd like to help out a little but can't afford or don't want new clothes, paypal me $25 and i'll send you a custom cell phone or glasses sleeve or a change purse made out of flannel or velvet or jersey from my remnants - here's what my phone sleeve looks like...
2/16/16 21:52 - complaints
asleep at mal 9/09
he is a fantastic artist! any thoughts?
Originally posted by n8_zilla at complaints
hi, LJ! no one reads this, but i'm going to complain... because when i complain elsewhere, no one responds. i'm more desperate than i've ever been to find work of ANY KIND, lest i end up living in my car. very few people seem to actually care.

if someone does actually read this, HELP! know of any job openings in the LA area? or things that can be done remotely? i know how to design things! know anyone who wants to buy a cheap painting? i'm having a sale! i can also do commissions.


what i am not prepared to do is live in my fucking car.

PLEASE, HELP!!!!!!!!!!!!
asleep at mal 9/09


these are all too big for me at my current 23" natural waist size; as i plan to stay where i am size wise, i'm offering them for sale at great prices. pieces by brute force leather, house of worship, vollers, tripp nyc, living dead souls & heavy red. if you're not a los angeles local, you're responsible for shipping fees.

brute force leather underbustCollapse )

house of worship underbustCollapse )

vollers overbustCollapse )

tripp nyc bustierCollapse )

living dead souls cincherCollapse )

heavy red waist cincher SOLD
burgandy and red cotton striped fabric with black trim, heavy steel boning and busk


p.s. part 1, new rock boots and underground 9 buckle winklepickers is here: http://alumiere.livejournal.com/451023.html
part 3, skirts, shirts, dresses, pants, etc: http://alumiere.livejournal.com/451757.html
my sewing skills on sale too: http://alumiere.livejournal.com/452233.html
and my katana is still for sale here: http://alumiere.livejournal.com/451271.html