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asleep at mal 9/09
alumiere
more stuff on invisible illness week... 
9/16/09 17:07
asleep at mal 9/09
http://invisibleillnessweek.com/ - the main website

my thirty questions on living with invisible illness in case you missed it is at http://alumiere.livejournal.com/330269.html

http://talkstowolves.livejournal.com/70229.html - about tmjd, pcos, and other illnesses
note: i was formally diagnosed with tmj sometime when i was a teenager, but i've lived with it ever since i was put in braces/headgear at age 7 to shift my jaw into alignment so it's something i'm so used to i forget it exists (my overbite was huge, they pulled 8 adult teeth before starting treatment at 7, and when my wisdom teeth came in those were pulled as well); that said, there are foods i can't eat and i cannot do certain things (like chew gum or open my mouth wide) without pain; for those of you who notice my jaw cracking when i yawn or chew, that's the tmj

about the monetary costs of living with a (mostly) invisible illness, in this case diabetes http://jimhines.livejournal.com/465788.html

about living with a permanent disability (damage to L3-L5 disks) http://seanan-mcguire.livejournal.com/152523.html

all i can ask of you, my friends and family is that you keep pushing for true health care reform on behalf of everyone in the US - our country's uninsured/underinsured and those of us who live with imperfect health desperately need better care (and i do not mean mandatory private insurance) including a public option
Comments 
9/17/09 1:57 (UTC)
We all know, I'm all about the health care reform.

Hang in there girl. I have to believe that tomorrow brings a better day for both of us. Nothing more frustrating than not knowing everything that's wrong, AND not knowing what to do about it all.

I'm glad you are writing about your experiences. It's valuable to have documentation of how the system is NOT working for people.