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asleep at mal 9/09
alumiere
Life and medical tracking update 
7/22/10 14:05
asleep at mal 9/09
This one is long, feel free to skip it. (loudtwitter stopped services, I didn't notice, new email feed set-up)

Saturday 7/10
01:14 Dancing was a total failure - bad music, asshats, bands that sounded like shit. I remember why I don't go to bunker often anymore. #almeds

Sunday 7/11
15:06 Yesterday was meh. Pain/numb mainly in my hands/arms, not my knees/feet; intermittently sunny & damp out; hovered around 7/7 w/ meds #almeds
15:08 Today is sunnier and warmer; no pain meds yet, pain/numb 8/7. Yesterday's 1 thing: writing; today's: dancing. Spent ~ 4 hours lazing #almeds
15:10 and reading out on the patio in the sun. That felt lovely, but now I'm sleepy. I think I will be napping before dinner. #almeds

Monday 7/12
03:04 Mal was fun/meh.... djxian made me want to dance; miss amanda not so much. also crowd was a mix of regulars and too many tourists/hipsters
13:25 Decent night at the club - not enough dancing, but spent time catching up w/ ppl I haven't seen much. Sadly, dancing hurt a lot. #almeds
13:27 Today pain/numb isn't as bad, 6/6 atm. Reading, more job search, etc this afternoon; Wumpskate (www.ladead.com) later I hope. #almeds

Tuesday 7/13
02:37 Wumpskate wasn't bad - didn't skate more than 8-10 songs total; pain 9, numb 6; had fun talking to people though. #almeds hot h2o after=win
02:38 bedtime was 90+ minutes ago, but waiting for meds to do their job and make my muscles finish relaxing. tomorrow = quiet day #almeds
12:53 Slept well. Pain ? (meds from last night = still fuzzy), numb 7-8. Today: attempt workout later. It finally seems summer is here. #almeds
20:53 Workout successful, pain is, flexoril taken with dinner just now. Tomorrow's 1 thing: workout again. #almeds

Wednesday 7/14
13:07 8-9 hours of fractured sleep; definitely summer (yeah!). Pain/numb 7/7. Today's 1 thing = workout. Right now, some reading. #almeds
22:47 Workout done, about 1/2 of yesterdays, but it's something. Dinner too (Hebrew Nat'l dogs, Bushes Baked Beans, & Tomato). Sleep soon. #almeds

Thursday 7/15
18:16 Today has been busy - more job stuff & some sewing; short workout later (no hands/arms). Pain/numb now 7/7. Stomach unhappy again. #almeds
21:39 No workout today-tomorrow instead. Pain/numb ^ to 9/9 now, 1/2 done w/ the simple skirt I started earlier. Bedtime meds & sleep soon #almeds

Friday 7/16
10:36 Slept ok, woken early by A showing up (I forgot). Pain/numb 8/9 atm, hoping some time in the sun will help. Stomach still upset too. #almeds

12:04 I've spent this morning reading about thyroid issues + fibromyalgia + CFS + memory loss. The ^ pain may be due to thyroid or fibro #almeds
12:06 I think I need to go back on cytomel/pure t3 to get the pain back under control. & the memory loss may be from to Hashimoto's too #almeds
12:08 Hashimoto's can cause inflammation across the board, and the memory loss if it's related can be treated w/ steroids. Must ask doc. #almeds


12:49 This is good, and it helps. http://distractible.org/2010/07/14/a-letter-to-patients-with-chronic-disease/ #health

19:13 Today's 1 thing: workout (after soma dropped pain/numb to 7/7). Back at 9/9, but at least this time it's because I did something. #almeds
19:15 Shower when A's done. Then dinner - scrambled eggs w/ goat's milk cheddar & salad from our container garden: pepper, tomato, herbs. #almeds

22:41 Make a point of starting something that you've been dreaming of, but haven't gotten around to yet. There's really no better time than now. RT @kambriel (Reminder: work on this)

Saturday 7/17
15:01 Broken sleep, up, annoyed and semi-depressed for no apparent reason. Pain/numb 8/7 atm. Today's 1 thing: dance - hope it helps mood. #almeds

Sunday 7/18
12:11 A bit of dancing last night, but not enough. Will try again tonight. Pain/numb 7/6, just got back from the farmer's market. #almeds
12:17 Strawberries, peaches, corn, green beans, tomato, cucumber, salad greens, peppers, bbq pork ribs for T. And very little walking. #almeds

Monday 7/19
14:39 Ovarian cysts suck. Pain at 10 with waves to 12 before pain meds since yesterday afternoon. Meds drop it to 7-9 but damn it hurts. #almeds
14:41 Danced some (not enough but better than saturday) last night. After meds, arm/hand/hip pain/numb 7/7. Today's 1 thing laundry. #almeds

Tuesday 7/20
15:17 Danced some (not enough but better than saturday) last night after meds, arm/hand/hip pain/numb 7/7. Today's 1 thing laundry. #almeds

17:09 Thyroid problems related to gluten intolerance? More questions for doctor. http://thehealthyskeptic.org/?p=835 #almeds

Wednesday 7/21
11:24 Gah. Construction woke me up way early. Headache, pain/numb 8/9. Right arm/hand totally useless. At least the cyst burst around 3am. #almeds
11:31 Of course, that means I was up til almost 4 dealing with the aftermath of cyst, so waking up at 10am was bad. Tired and cranky. #almeds
11:50 Today's 1 thing - job search, drs stuff, package to @shadesong. Hope numb decreases so I can work on some sewing. Stupid body. #almeds
13:41 Blarg - construction outside continues to be very loud and annoying. This is not helping my headache - it's becoming a migraine fast. #almeds
Comments 
8/2/10 2:55 (UTC)
I'm sorry you have to wrestle with this stuff all the time. Serious drag. But I have faith that the new Dr., although a hippie & sometimes annoying, knows what she's talking about. Can't explain, as I haven't met her, duh, but I like what I have heard/read so far.

Hang in there, chica. Things will likely never be the same for you, but figuring out how to live the best, most you life you can, with the changed circumstances seems to be key.