August 30th, 2010

asleep at mal 9/09

A mostly good weekend

Friday we went to Das Bunker, which was better than recent attempts but still too many kids and fucking hipsters. Also, I was hurting big-time all night. I didn't dance at all, but I did get to meet catalytic_kali and see some friends so it could have been worse.

Saturday was mostly lazy; did some food prep for Sunday's BBQ in honor of desiringmachine's birthday, and started editing ninjacooter's second book. I really like where it's going so far, and I'll pimp it mercilessly when it's done.

Yesterday was the above-mentioned BBQ which was small and awesome. Meat (beef in red wine/spices, chicken in white wine/spices) & vegetables on sticks plus homemade potato salad, tabouli, spicy tomato salsa, and roasted corn & black bean salsa. Good conversations with desiringmachine, n8zilla, hypnobella & S, Becca & her mom and a few other people who I don't have on lj.

Then we changed clothes and went to mal where we danced and spent more time hanging out with friends. xianvox spun great music, and although I would have liked to dance more, I got in as much movement as my body would allow.

Today will be spent recovering from yesterday; but I'm ok with that for a change. I just wish that my pain levels would drop to manageable again, and that my memory wouldn't fail me as often as it seems to do. But I'm lucky to have so many good friends and enough spoons to go out dancing once a week, so I'll enjoy it while I can.
asleep at mal 9/09

Twitter tracking

8/17/10
1:23pm Awake, pain/numb 8/7. My brain does not comprehend failbook at all. Must go to grocery store today. Still tired, nauseaus - yeah. #almeds
7:09pm This. On chronic pain and the attitudes we get in the US: http://patientc.blogspot.com/2010/08/pain-attitudes.html #almeds #ableism

8/18/10
3:30am Insomnia is bad tonight, my brain isn't working in any real way, but it still won't turn off. Sleep would be good please. #almeds
5:26am Seriously, it's 5am and I'm still awake. This is not right, and means today will be an utter waste. #almeds Stupid body/brain fail.
1:28pm ~ 5 hours of sleep isn't enough. Pain/numb 8/7. Hopefully I'll sleep better tonight. For now, work on pictures. #almeds
7:32pm Today's 1 thing: clean up dishes, clear extra table so Spyke could pick it up. Done. Pain/numb 8/7. Warm summery weather finally. #almeds
11:07pm Took bedtime meds early in the hopes of getting a decent night's sleep tonight; bed very soon. Pain/numb 9/8, high for a nice day. #almeds

8/19/10
12:43pm 12 hours of intermittently interrupted sleep. Not as tired, but pain/numb 9/6. Why? It's finally summer here, warm, sunny, dry. #almeds
12:44pm TENS and stretching shortly in hopes that I can get some clean-up done today. Piles of fabric, bits of trim, etc are everywhere. #almeds
10:30pm Yeah - it feels like i have hair stuck in my throat. Coughing non-stop. WTF? It's August, I'm not sick, just this scratchiness. #almeds

8/20/10
9:11pm Today's 1 thing - wake up around noon, slept ok, not great, help A clean new rental before moving in - it was absolutely disgusting. #almeds
9:20pm Pain/numb 9/7. I hurt, but at least it's pain I did something to get. 0 spoons, lazy nite so I hopefully have energy to dance Sat #almeds

8/21/10
1:38pm Wow - still tired. I kept waking up because my arms/shoulders were on fire in a bad way. Pain/numb 9/7. Today's 1 thing: Disko Nekro #almeds
4:00pm A and I just had yummy mexican foods for lunch. I am very happy about that - Carne Asada made right is awesome. #foodisgood

8/22/10
12:59pm Farmers market accomplished, fresh fruit, veggies, eggs. Gaya melon (with whiteish rind) are a delishious new find. Nap soon. #almeds
6:08pm Long nap. I feel much more human. Pain/numb at 6/5 (was at 8/7 pre-nap). Dancing at Mal later. #almeds

8/23/10
2:59am Not enough dancing toinite; we all missed @xianvox and her music choices/skills. Danced a bit, achy. Hot water and bed shortly #almeds
7:00pm Dr's appointment took nearly 3 hours. Her office is miserably cold and uncomfortable. Pain/numb 9/8. I'm done, having Greek delivery #almeds
7:02pm Brain = mush, overwhelmed by information, stunned with how bad my test results are. At least we're trying new thyroid med at ^ dose. #almeds

8/24/10
2:19pm Sadly, we missed Marissa's birthday gathering at Ground Control; after the doctor I ate (delivery greek = yum) and was asleep by 9pm #almeds
2:24pm Today is somewhat better - heading to laundromat soon, pain/numb 7/7 after 12+ hours sleep. Brain still overwhelmed though. #almeds
6:29pm Laundry done, damn was it warm in the laundromat. Also went to Vitamin Shoppe for suggested meds ($230). But 1 thing was productive. #almeds
6:30pm I hope supplementing amino acids (which were all crazy low) & B/A/C help. My body apparently isn't processing food properly. #almeds

8/25/10
12:29am Talk to Doctor about this: http://io9.com/5377444/is-chronic-fatigue-a-communicable-disease #almeds #science
4:22am Went to bed, slept for about 3.5 hours, woken by fubar dream + pain. Waiting for meds to work - I am tired as fuck. #almeds
7:29am 3+ hours later I think I'm ready to sleep again. I hate my brain/body doing this shit. Pain/numb 8/7 atm, hopefully more sleep helps #almeds
3:36pm Sleep fail mostly rectified; slept from 7:30 to 1 with a brief interruption/phone call. Pain/numb 7/7, eating late lunch atm. #almeds
3:59pm Spent an hour sorting new meds & re-organizing cabinet. Once again over 40 pills/day. & two batches must be on empty stomach - bleh. #almeds
4:01pm Take Thyroid, etc; wait 2 hours, take iron/aminos, wait an hour, then you can eat. Wait 2 hours, take more aminos, wait an hour, eat. At least 2 hours later (at bedtime) take last of aminos. Hate. #almeds
10:24pm Wow - amino acids are huge pills, to be taken on an empty stomach, and cause serious heartburn. Do not like. Pain/numb ^ to 9/8. #almeds

8/26/10
1:49am I should be in bed, but pain is bad and sleep is not happening. Hopefully soon; amino acid hearburn continues too - bleh. #almeds
3:12am Time to try bed again. Pain still at a 9, so this is not promising. Even my face hurts today. TENS and heat have failed, meds too. #almeds
3:10pm Fractured sleep, continuing heartburn, pain/numb 8/8. I hope my body adjusts to these new meds quickly. Plan = workout if possible #almeds
4:56pm Gah. Pain/numb 10/8 now, Headache/migrain, face hurts, heartburn. Please get yourself together body and adjust already. #almeds
5:31pm Ah... in addition to new meds, it appears my 2 wk cycle is shorter than usual; last one started 8/15. Sometimes I hate being female. #almeds
5:33pm At least that explains some of the pain level and the growing migraine. Hope it'll go away quickly. #almeds
9:13pm Ahhh... heating pad and pain pill helped some, at least the part of my lower back. Rest of me still at 8/8. Stupid body. #almeds

8/27/10
5:38am T's alarm woke me, but at least I slept for about 5 hours so far. Waiting for melatonin to kick in so I sleep more. #almeds
1:17pm Slowly waking up. ~ 10 hours of sleep in between very odd, disturbing dreams. Pain/numb 8/7. May it stay this way. #almeds
5:08pm Hmmm... may join the napping boy. Today's 1 thing: Bunker later. Tired and still hurty although less pain than yesterday. #almeds

8/28/10
1:59am Bunker = meh. Still too many hipsters, but not as bad as usual. Pain OTOH means I didn't dance at all :( Bedtime soon. #almeds
10:30pm Meh. Fractured sleep, not a great day at all. We did, however, make salad and roasted corn salsa for tomorrow's bbq. Pain/numb 8/7 #almeds
11:47pm Is getting cold and somewhat damp here; pain goes up. Sleep in the near future I hope. #almeds

8/29/10
No twitter today; went to a bbq then dancing at mal. Pain/numb was 7/7, brain slow and not always there during bbq. I do not like this memory fail, and the new meds continue to bother my stomach.