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asleep at mal 9/09
Crap, Crap, Crap... 
12/2/09 19:49
asleep at mal 9/09
Lyrica - one of the medications added in this week's specialist visit (total cost with prescriptions ~ $1200 of which I've made less than $300, and I also still need to come up with the $960 for the Lyme testing) makes me even more stupid, so nauseous and upset stomach wise I can barely eat, and doesn't help with the pain (TMJ, Neck, Headache all worse!).

I called the Dr.s office this afternoon after the second dose - I was told to work up to taking this three times / day; 1st dose made me fuzzy pretty much all day, 2nd dose 24 hours later made the fuzzy worse, and nausea so bad I can't take this drug. They agreed that I need to stop taking it, but we need to find something to help with the fibro pain that doesn't mess me up this bad. I'd rather take the med that causes hallucinations twice a day than take Lyrica again.

In the meantime, I am still unemployed but looking hard. Any suggestions for work in Santa Monica/West LA that doesn't require driving or heavy physical work would be awesome.

I have a bunch of stuff up for sale on my journal here: http://alumiere.livejournal.com/355442.html

And I am once again asking for donations to help me pay these medical bills. If you've already donated please just pass this link on. You'll already be in the drawing for books.

However, I have decided that I want to give something back to people who donate - so I'm going to clean out my book shelves and give away books to my donors. Every $10 donation will get you a chance at a group of books (if you donated previously you're already in). I'll draw random donors when I hit the $2500 mark which will pay for my current medical bills and the Lyme test and mammogram and leave a few dollars left over for shipping the books out.

Please, please, repost this link to everyone you know; I keep putting off the Lyme test because of the price, and I need to get the mammogram as well which I have to pay for a good portion of.

FYI for those who are new here: I've been coping with Fibromyalgia, Hashimoto's Thyroid, and Chronic Fatigue Syndrome for years. Expensive but working treatment until last fall when stress levels got so high I pretty much broke. Then I lost my job and haven't found one since. That's why I'm asking for help... I need to continue treatment and find out what is causing some of the unknown symptoms so we can get that under control as well. Thanks for reading.
12/3/09 12:22 (UTC)
I've donated again, but as much as I love books, don't send me any, plz. Moving in spring. If my place can then have more books, I'll let you know. *hogs und quiches*

Good luck to you grrl.
12/3/09 13:06 (UTC)
Question about the Lime Tests... did you already have this done, or do you still need to get the test?
12/3/09 19:00 (UTC)
I've had a basic lyme panel done through Qwest; that came back with 1 factor positive. Because that could be a false positive or the other factors could be falsely negative they want me to go for a basic lyme panel and a complete co-infection panel through IGenX. I get the blood drawn next door to their office (before 11am M,T,W only), and the samples get same day'd to the lab for testing. But I have to pay the $960 out of pocket and then submit to BC/BS who won't pay for anything else I've paid out of pocket, so why would they pay for this?
12/3/09 13:35 (UTC)
Have you ever taken tramadol? I used to take that ocassionally for TMJ -- effective painkiller, no buzz but a mild antidepressant effect.
12/3/09 18:53 (UTC)
Tramadol? Yeah - that gives me migraines about 50% of the time; I still take it if I hurt bad enough to risk a migraine.

And the other two pain meds they give me are narcotics - one is "weak sauce" in that it'll help with low level pain, but won't touch it if I seriously hurt, and the other causes hallucinations (but I no longer care about the pain).

They want me on a daily fibro pain med that works but doesn't have so many side effects. That was the idea behind trying me out on Lyrica - but I have enough days where my brain doesn't work; I don't need a medication that makes me really really stupid for 8 hours at a shot (as in, I literally could not get the words out clearly when talking; both T and I agreed it sounded like I was talking with a mouth full of novacaine, and felt the same, only over my whole body). It also made the numbness in my arms/legs constant as opposed to intermittent.

I'm going to ask them to try me on Savella next; that has many fewer side effects. I'm also going to ask for Toradol again (he's worried about kidney damage, but that was not something I ever took daily when I was on it for arthritis pain, and I wouldn't take it daily now, just when it's really bad).

I understand what he's trying to do with the fibro/cfs/hashimoto's but finding the right combination of meds for me is tough. At least I'm sleeping better and more awake during the day right now.