alumiere (alumiere) wrote,

Meds update, Fashion Show Recap

It's been a few weeks since I've done this, so I'm going to put the tracking behind a cut for now, but remove the cut this weekend (sorry if you run across the huge update once it's uncut). I have another doctor's appointment Monday, and I need the info search-able and viewable.

7/31 - 8/15 Meds Tracking

1:31am Ouch. Went out, bought the birthday boy two drinks (he's finally 21) and mostly spent the night talking to people; danced to 1 song. #almeds
1:52pm Up, slept well, pain/numb 7/6. Sunny & warm helps. Bunker was better than last time, although no dancing for me (they need an elevator!).
1:54pm Today's 1 thing: more sewing, errands w/ T. Maybe bowflex (focus on stomach/back). Right now, make lists of things I need to get/do. #almeds

6:57pm Productive day sewing wise, but pain/numb has gone from 5/5 (a great day) to 8/7. Relax, dinner, maybe nap. Then dance later. #almeds

1:30pm Awake, I think I overdid it yesterday even w/ the lazy early evening. Danced, talked to friends, a good nite. But I'm definitely... #almeds
1:33pm in negative spoon territory. Today I will sit in the sun, maybe sew and read, probably more napping. Now, lunch and meds. #almeds
2:18pm Another day when my body doesn't want to keep food. Yesterday too. I am tired of this; apricot & toast should not = upset stomach. #almeds
6:04pm Ok. Going to try taking acidophilus twice/day and going back on nystatin in the hopes that helps. But this isn't acting the same as...
6:06pm previous flare-ups of Candidia. Done with all productivity, and wiped, I am now going to lay on couch and veg/read. #almeds

11:43am Awake, ~ 6 hours of broken sleep. Stomach still unhappy. Pain/numb 8/6. Today's 1 thing: sewing. All the food I managed to keep... #almeds
11:44am...yesterday was juice & cheese. Will repeat that food choice in a few hours and hope it sticks; I'm so fucking hungry. #almeds

1:23am Done sewing for today; I feel like I accomplished very little, this isn't going well. Pain/numb 8/7, stomach somewhat better though. #almeds
12:46pm ~ 9 hours of sleep, pain/numb 9/7 (highest in right hand/arm today). Stomach about the same. Hoping stretching in the sun helps. #almeds
1:11pm Grrr... trying to print something for A, cannot find printer on network, reinstall of drivers failing too. Hopefully T can sort it out...
1:12pm as my brain is not functioning properly and I can't see what the problem is. This should be easy, I used to be a NOC manager! #almeds
1:40pm Sun/stretching did little, eating lunch, reading, TENS machine at 7. I have sewing to do, but pain/numb must calm down first. #almeds
6:51pm Wow. I am out of it today. Of course I couldn't reconfigure the printer; I was using the wrong cable. Also, no coordination at all. #almeds

12:49pm Pain/numb 8/7, lovely day, spent some time in the sun. Today's 1 thing: sewing. Got none done yesterday. Upset stomach continues. #almeds
12:51pm Having lunch - the last peach, salad. Hopefully this sticks with me for a bit, tired of getting sick every time I eat. #almeds
10:38pm Fuck. Still failing at this damn zipper. Pain up to 9, giving up. Will try again tomorrow. I have to get this done so I can move on. #almeds

11:40am Ok - pain/numb down somewhat to 6/7 (except right hip pain - 9). Slowly waking up, lunch then resume sewing. Hope today goes better. #almeds

12:14am Zipper #1 finally done, shirt #1 making progress - 1 of 2 sleeves mostly done, need to do collar then verify fitting. Pain/numb 9/8. #almeds
12:17am Now, TENS, some reading/relaxing & sleep. Tomorrow - finish B's outfit as much as possible & keep sewing, hope body cooperates. #almeds
1:31pm Another gorgeous day, pain/numb 7/6. My body seems to be cooperating mostly although I didn't sleep well. More sewing soon. #almeds

1:06pm Some success: skirt done, sleeves almost, shirt just needs trim, working on neck piece. Today-errands, sewing, dance. Pain/numb 8/6 #almeds

12:23pm Ow... Pain/numb 9/8. Need to make garment/price list, take pics, lots of sewing, fit B - too much. Stretching/TENS, then back to it. #almeds
2:14pm Lunch break and pain meds, slow progress. T is working on wiring for the skirt, neck corset mock-up 80% done. #almeds
5:02pm Grrr... body is not cooperating at all today. T is finishing kilt, i've got neck corset & the rest of B's outfit ready for fitting #almeds
5:05pm but enough pain to make me nauseous & shaky isn't productive. Hoping I didn't fuck up the yellow dress for C to model - we'll see. #almeds
10:41pm Blah. Fitting done, lots of small adjustments to make. Price list/descriptions sent. Yellow dress progressing. Pain/numb 8/7. #almeds

12:29pm Overslept by two hours. Broken sleep, pain in new places kept waking me up. Currently pain/numb at 9/6. Read, food/meds, sew. #almeds
11:52pm This takes forever. 9' hoop lit, wired and ready to hang, 7' hoop ready to install lights/wires. Pain/numb 8/6. Bed soon. #almeds

11:43am Ouch, ouch, ouch. Hands, arms, shoulders are pain 9. Overall pain/numb 7/7. More sewing; fortunately I have help. Stomach issues continue #almeds
10:58pm Slow progress is slow, pain and frequent trips to the bathroom don't help. Hoop skirt is 80%, hairpiece 70%, neck corset 40%. Tired! #almeds

12:52am Up because of pain, headache. Waiting for meds to do their job. In the meantime, the last few weeks sucked physically, I'm fried. #almeds
12:54am Follow up with Endo on Monday, hopefully she'll have some ideas/changes to make. I'm vacillating between useless, furious, & depressed. #almeds
6:10pm Pain/numb 9/7, time for a nap. More help today, M's dress is fitted, T is working on wiring for the neck corset, white fishnet cut. #almeds
6:12pm My body is one big knot of misery and achy, I'm so glad I've had a ton of help or things would never be ready for Sunday's show. #almeds
8:32pm Nap didn't help, pain/numb now 10/9. No more sewing for me today (I feel like friends did most of the work today anyway). #almeds
8:35pm Muscle relaxers, pain meds, dinner, maybe hot water, and more sleep. Hopefully tomorrow I'll feel better. I'm running out of time. #almeds

9:13pm Doing somewhat better today; collar built, wiring done, just needs trim. Hoop skirt 85%, working on fishnet dress. Pain/numb 8/7 now.
9:15pm Slept like 16 hours last night, pain/numb started today at 7/6, I guess the muscle relaxers helped. Assistants also rock. #almeds

8/14/10, 8/15/10
More pain, more sewing, more help, more oversleeping, fashion show.

3:34am Show over, I think it was a success. We've been tentativey invited back next year... exhaused, can't type well atm. Bed soon #almeds
2:13pm nifty.. muscle cramps in my feet now. Totally new intense pain. Wow. Way past bedtime/ #almeds (from 3:30am ish today)
2:16pm sleep semi-successful, pain kept waking me up. i've given up on sleep for now, pain/numb 9/8. taking it very easy today. #almeds
5:38pm meh - apparently 10ish hours of sleep wasn't enough, i will be taking a nap shortly. pain/numb 8/8 after lunch meds & stretching. #almeds
7:08pm Also failed at napping, pain is. 9/8, will take pain meds shortly. Boy is making dinner too, so I don't have to move from couch. #almeds

A bit more about the fashion show - my goal was to have 5 outfits complete, and I did, thanks to tons of help. I had also already completed both B's skirt and T's kilt except for some minor adjustments well before being asked to participate. Still, everything took way longer than I thought it should, my pain levels and unsteady hands were a real problem, and I ran out of pain meds that I can tolerate without becoming stupid a week before the show, only the doctor wouldn't call in a refill.

I remember the hell that was Into the Woods when I was in grad school; I was incredibly sick throughout the month + build (bronchitis, something like but not mono, possible walking pnuemonia), but that was a breeze in comparison, and all this show involved was sewing. No building props, carving foam, welding set pieces, etc. And I had more help this time than I did during Into the Woods to boot.

I am glad I participated in the show, I'm thrilled with some of the results (and not so much with others - note to self: do not let boys pick plastic fabrics unless they are going to do the construction themselves) and I hope the pictures turn out well. But I also failed to allow enough extra time for body breakdowns even though I expected them and started work well ahead of time.

I obviously need to do better at working within my limitations, which means expecting no more than 4 hours a day of true productivity, and on bad days none. I hate this, and I'm not getting better physically nor am I coping well. I would really like to have more than one good day a month, and to have that good day last for more than a few hours. I am not good at this, and my memory failures continue to be a problem quite often.

I am incredibly lucky too - I can still walk, I can still dance, I have family and friends who help out whenever possible, who go above and beyond. But I miss being the one who helps others rather than needing help myself. Thanks all for propping me up. I love you.
Tags: creativity, la life, medical

  • Post a new comment


    default userpic

    Your reply will be screened

    Your IP address will be recorded 

    When you submit the form an invisible reCAPTCHA check will be performed.
    You must follow the Privacy Policy and Google Terms of use.
  • 1 comment