So lately I've been spending a lot of time during the week doing very little, because my body is being incredibly uncooperative. But I'm saving my energy for weekends - I want to have a bit of a life. Our Sunday club nights are back, at a new location, which makes me happy. Good music and friends are worth the wait and the aftermath. And I get to dance for a bit, which is the one time I feel centered and like myself.
I also marched in LA Pride this year with the
Bent-Con group. I cosplayed a gender bent Spider Jerusalem. Not really happy with the way the sunglasses came out (or the fact that I broke them), so I'll probably revisit them before Bent-Con.
Me, with Zach (as The Doctor) and Eric.
We also hosted a pair of BBQs Memorial Day weekend - Sunday was the LA/East Coast contingent, to celebrate Bellz' and Jody's birthdays. Monday was the rest of our friends. Both days were lovely, and I had lots of help getting ready/cleaning up and other people handled most of the grilling, although I was wiped out afterwards.
And this past Saturday evening was spent at Big Art Labs at another BBQ/gathering; this time for Bellz' and Jody's 20th 'Maniversery'. It was lots of fun even though I was feeling really crappy because the face!pain! would not quit; sorry if I seemed grumpy or anti-social at times everyone - I did my best.
I'm sometimes amazed that I have so many friends who are willing to be patient with me and help when I'm less than with it. I love and appreciate all of you! Especially T who has gone above and beyond lately as I fail to cope with this new face!pain!
A bit about face!pain! if you want to read it... It feels like someone has been beating the lower half of my face with a sock full of quarters - pretty much all the time, no matter what I do or what meds I take. It's pretty fucking unbearable and very very exhausting. Add that to the normal I'm broken and I am barely coping.
Oh, and yes, I've seen a dentist - there doesn't seem to be a cause for the face!pain!, in that I don't have cavities or anything that are hitting the nerves - it's probably a combo of TMJ and fibro pain. That said, I need about $6000 in dental work done - old fillings that need replaced, and new veneers to replace the bonding on my front teeth from when I was about 8 and broke them in half. Of course I still have no insurance or income, so how to pay for that is a big unknown. One step at a time; cleaning is next in mid-July.
